Adelaide is using its upcoming home match as another opportunity to raise awareness and money for a life-threatening and rare disease affecting children from birth.
For the second straight year, the Club is linking with international charity EB Research Partnership to help find a cure for Epidermolysis Bullosa, or EB as it is most commonly known.
The disease attacks the body’s largest organ – the skin – as well as the connective tissue and internal organs. Sufferers lack the critical proteins that bind the skin’s two layers together, which means the skin tears, blisters and shears off causing pain and disfigurement.
Everyday activities, such as eating, sleeping and walking, that most people take for granted become a source of fear and pain.
Members and fans will have the chance to donate to the cause at the Crows’ Round 21 game against Gold Coast at Adelaide Oval, as well as buy EB Research Partnership merchandise.
Former captain Rory Sloane also recently recorded an interview with Eddie Vedder, of American rock band Pearl Jam, who along with his wife Jill and a dedicated group of parents, founded the charity.
Sloane was joined by Brisbane Lions great Jonathan Brown in doing the Vedder interview which will air on Fox Footy at half-time of the match broadcast, while excerpts will also be shown on Adelaide Oval’s big screens and the Crows’ social media channels.
Crows CEO Tim Silvers said the Club’s players, coaches and staff found inspiration in the courage shown by children suffering from EB.
“People impacted by this disease, as well as their loved ones, struggle through adversity on a daily basis,” Silvers said.
“Unfortunately, there is no cure and we want to do our part to help find one, and we admire the efforts and progress being made by the EB Research Partnership here and abroad.”
EB Research Partnership CEO Michael Hund is grateful for the Crows partnership, saying the Club is among a group of key partners doing their bit to accelerate treatments and cures.
“We are always striving to fund the most impactful science, such as the research currently being undertaken at the University of South Australia, with our overriding mission being to cure EB by 2030,” Hund said.
“Raising awareness and generating much needed funds for life-saving research among the Crows and their fans, is a critical part of this mission and the children who battle this disease inspire us with their bravery, determination and heroism.”
To learn more about EB Research Partnership’s mission and get involved, visit https://ebresearch.org.au/
